Down Syndrome Blog

I haven't updated in a while, so here goes...Sam is about to finish his second year in a Kindergarten/Special Needs class. He spends part of his day in the Special Needs class and the other part in the regular Kindergarten class. According to his progress reports he is making progress but I am not seeing much of it here at home. He has become very stubborn lately and won't show me the things he learns very often. This summer I will be searching for options that will help Sam learn better.

Jun 27, 2012

About Down Syndrome

A site to bring you as much information as possible about Down Syndrome from a more personal perspective.

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Feb 29, 2012

Leukemia and Down Syndrome

Wondering about leukemia and Down syndrome..read what these parents have to say.

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Jul 17, 2011

Famous People With Down Syndrome

Did you know there are many famous people with Down Syndrome out there? Take a look at their inspiring stories here.

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Aug 21, 2010

Back to School

Back to school dilemma

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Aug 12, 2010

Down Syndrome Health

Down Syndrome Health gives a brief description of some of the health problems a person with Down Syndrome may have.

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Aug 11, 2010

Diabetes in Children with Down Syndrome

What every parent should know about diabetes in children.

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Aug 11, 2010

Taking Care of Yourself and Your Family When You Have a Child With Down Syndrome

Some advice on taking care of yourself and your family when you have a child with Down Syndrome

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Aug 05, 2010

Update August 2010: Still Not Speaking

An update on oue son Sam, who has Down syndrome and a cleft palate and is still not speaking.

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Mar 04, 2010

Teeth and a Voice

Sam is 6 years old now and in Kindergarten. He recently lost a tooth and the new one has come in almost completely sideways. The dentist says this is pretty common for kids with Down syndrome. Meanwhile, his other teeth are getting shorter and shorter because of his incessant grinding. Aaargh. What to do? On another note, he still is not talking. He has started using PECS (Picture Exchange Communication System)at school and seems to be doing great with that. He also still signs some, but not many of the other kids know sign language. The other day I was picking Sam up at school and as one of his classmates was leaving he was trying to get the other boy's attention (to say bye). Since he is unable to say much, he just yelled, "Aaaaah!", and as his mother and translator I knew instinctively what he was trying to accomplish. Its heartbreaking when you know your child has so much to say, but cannot. I am more determined than ever that Sam really needs a "voice", not just a book with pictures to exchange. Now, I'm not saying the picture exchange thing is not good, but he needs a real voice! I'm thinking the Dynavox V or VMax, though they are quite costly. I wonder if insurance will pay for any of it...

Jul 12, 2009

Down Syndrome Statistics

Down syndrome statistics and incidence

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Mar 29, 2009

Prenatal Diagnosis of Down Syndrome

This page is for parents who have received a prenatal diagnosis of Down Syndrome for their baby

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Feb 28, 2009

Down Syndrome Support Groups

A listing of Down sydrome support groups

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Feb 09, 2009

Einstein Syndrome

Einstein Syndrome is an article that really, really hits home.

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Nov 05, 2008

Inspirational Stories

I have been getting a few emails here and there with stories of inspiration about kids who have Down syndrome and I would like to share them with you at Inspirational Stories

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Nov 05, 2008

Down Syndrome Inspirational Stories

Looking for an inspiring down syndrome inspirational story? This is the place to find it.

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Jul 03, 2008

Education and Kids with Down Syndrome

Getting a good education is important for kids with Down Syndrome. Join us as we navigate through the public school systems in the U.S.

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Jun 30, 2008

Online Community

Did you ever wish you could "talk" to other parents or caregivers of persons with Down Syndrome? Are you a person with Down Syndrome wanting to chat with others who have Down Syndrome? Click on the logo below to visit this safe online community.

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May 16, 2008

Call for Photos

For all you proud parents of kids with Down syndrome, enter the Times Square Video Contest and you might see your little one on the big screen! Details can be found here :

Contest

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Apr 22, 2008

Sam's Adventures

I wonder how many other parents of kids with Down Syndrome there out there who are having trouble with keeping their child in the house?!?!

Sam has a very adventurous and inquisitive nature and keeping him in the house is a 24/7 job!

Ours is a rather large household, including four (yes four!) teenagers, two grade schoolers, Sam, and a 3 month old baby. As you can imagine our little 2000 sq.ft. home is quite chaotic at times. People are coming and going all the time, noise levels can easily get out of control, sometimes its just a plain madhouse!

We have latches high up on ALL the doors leading to the outside world! And yet...Once in a while Sam manages to escape. Just last week he was brought home by a kind elderly man (whom we are not acquainted with who lives on the street perpendicular to ours. Its happened before...other neighbors have brought him home. We have frantically searched the yards and streets near us for our little runaway. Once he even woke me up early in the morning by knocking on the door. It turns out that when my husband had left for work (this was before we had latches at the tops of the doors) Sam woke up and decided to go exploring.

He has long since figured out how to get around the Safety door knob covers you can buy almost everywhere. I don't think it will be long before he figures out how get around these latches as well. Already he is pulling a chair over to the door trying to reach the latch. It's only a matter of time before he starts stacking things on top of the chair until he can reach.

What to do?!?!?! Any ideas? Please send me an email.

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Mar 13, 2008

Sam's Hippotherapy

Our four year old son who has Down Syndrome has started hippotherapy! Read all about it here.

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Feb 14, 2008

Down Syndrome Article

I came across this article today...the story of two women with Down Syndrome who were used as suicide bombers in Baghdad. What a sad state our world is in. Of course, in many countries around the world babies with Down Syndrome are aborted just as easily as these two women were targeted... Should our outrage be the same for both situations? Only you can answer that for yourself. For me, having a child with Down Syndrome has brought such joy. Sam is truly a delight and though there are difficulties and worries, it's worth it. What child does not cause difficulty and worries. Our struggles with Sam are just different from those we have with the other kids and believe me its been such a growing and eye-opening experience!

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Jan 15, 2008

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Jan 12, 2008

Helpful Links

Lists links to other helpful sites

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Jan 11, 2008

Hippotherapy in Down Syndrome

Is your child getting bored with the same old tricks from his therapists? Hippotherapy in down Syndrome will enlighten you about he new 'therapy with a twist'!

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Nov 18, 2007

Hippotherapy for Sam

We are about to embark on a new adventure with Sam. Though he has made great strides in the private speech therapy sessions he has once a week, he seems to be getting a little bored. We have decided to try hippotherapy after Thanksgiving. He loves animals and the time he got ride on a pony at a school carnival he did not want to get off. Visit our hippotherapy page to get a basic idea of what it is and who it can benefit. Look for more information about Sam's first session after Thanksgiving!

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