Down Syndrome Blog

Jul 3, Education and Kids with Down Syndrome

Thu, 03 Jul 2008 04:33:22 GMT

Getting a good education is important for kids with Down Syndrome. Join us as we navigate through the public school systems in the U.S.

Jun 30, Online Community

Mon, 30 Jun 2008 16:04:11 GMT

Did you ever wish you could "talk" to other parents or caregivers of persons with Down Syndrome? Are you a person with Down Syndrome wanting to chat with others who have Down Syndrome? Click on the logo below to visit this safe online community.

Jun 22, Famous People With Down Syndrome

Sun, 22 Jun 2008 03:46:57 GMT

Did you know there are many famous people with Down Syndrome out there? Take a look at their inspiring stories here.

Jun 17, Down Syndrome Health

Tue, 17 Jun 2008 23:59:25 GMT

Down Syndrome Health gives a brief description of some of the health problems a person with Down Syndrome may have.

May 16, Call for Photos

Fri, 16 May 2008 22:32:40 GMT

For all you proud parents of kids with Down syndrome, enter the Times Square Video Contest and you might see your little one on the big screen! Details can be found here : Contest

Apr 22, Sam's Adventures

Tue, 22 Apr 2008 20:01:44 GMT

I wonder how many other parents of kids with Down Syndrome there out there who are having trouble with keeping their child in the house?!?! Sam has a very adventurous and inquisitive nature and keeping him in the house is a 24/7 job! Ours is a rather large household, including four (yes four!) teenagers, two grade schoolers, Sam, and a 3 month old baby. As you can imagine our little 2000 sq.ft. home is quite chaotic at times. People are coming and going all the time, noise levels can easily get out of control, sometimes its just a plain madhouse! We have latches high up on ALL the doors leading to the outside world! And yet...Once in a while Sam manages to escape. Just last week he was brought home by a kind elderly man (whom we are not acquainted with who lives on the street perpendicular to ours. Its happened before...other neighbors have brought him home. We have frantically searched the yards and streets near us for our little runaway. Once he even woke me up early in the morning by knocking on the door. It turns out that when my husband had left for work (this was before we had latches at the tops of the doors) Sam woke up and decided to go exploring. He has long since figured out how to get around the Safety door knob covers you can buy almost everywhere. I don't think it will be long before he figures out how get around these latches as well. Already he is pulling a chair over to the door trying to reach the latch. It's only a matter of time before he starts stacking things on top of the chair until he can reach. What to do?!?!?! Any ideas? Please send me an email. Contact Us

Mar 29, Diabetes in Children with Down Syndrome

Sat, 29 Mar 2008 02:50:17 GMT

What every parent should know about diabetes in children.

Mar 14, Sam's Hippotherapy

Fri, 14 Mar 2008 02:52:37 GMT

Our four year old son who has Down Syndrome has started hippotherapy! Read all about it here.

Feb 14, Down Syndrome Article

Thu, 14 Feb 2008 14:28:04 GMT

I came across this article today...the story of two women with Down Syndrome who were used as suicide bombers in Baghdad. What a sad state our world is in. Of course, in many countries around the world babies with Down Syndrome are aborted just as easily as these two women were targeted... Should our outrage be the same for both situations? Only you can answer that for yourself. For me, having a child with Down Syndrome has brought such joy. Sam is truly a delight and though there are difficulties and worries, it's worth it. What child does not cause difficulty and worries. Our struggles with Sam are just different from those we have with the other kids and believe me its been such a growing and eye-opening experience!

Jan 15, fsga4d9d

Tue, 15 Jan 2008 14:20:56 GMT

Jan 13, Helpful Links

Sun, 13 Jan 2008 04:31:06 GMT

Lists links to other helpful sites

Jan 11, Hippotherapy in Down Syndrome

Fri, 11 Jan 2008 16:26:17 GMT

Is your child getting bored with the same old tricks from his therapists? Hippotherapy in down Syndrome will enlighten you about he new 'therapy with a twist'!

Nov 18, Hippotherapy for Sam

Sun, 18 Nov 2007 06:31:25 GMT

We are about to embark on a new adventure with Sam. Though he has made great strides in the private speech therapy sessions he has once a week, he seems to be getting a little bored. We have decided to try hippotherapy after Thanksgiving. He loves animals and the time he got ride on a pony at a school carnival he did not want to get off. Visit our hippotherapy page to get a basic idea of what it is and who it can benefit. Look for more information about Sam's first session after Thanksgiving!

Oct 15, Down Syndrome Printables

Mon, 15 Oct 2007 21:33:49 GMT

For babies with down syndrome printables that are visually stimualting like these are great to hang up in areas where baby spends a alot of time.

Sep 17, About Down Syndrome

Mon, 17 Sep 2007 16:33:08 GMT

A site to bring you as much information as possible about Down Syndrome from a more personal perspective.

Sep 8, Sammy goes back to school...

Sat, 08 Sep 2007 05:37:26 GMT

Sammy's second year in PPCD is off to a running start! Last year we did it their way. Well this year it's going to be MY way. Sam's school is supposed to be one of the best in the area for special ed. Ha! That may be, but I was pretty disappointed with the progress he made last year. Last year he was in a full PPCD class. Because of his cleft palate (which has been repaired) he is having more difficulty learning to speak than the average child with DS. My biggest concern last year, as well as this year, was that he would be around speaking children. Unfortunately that was not the case. I let the "professionals" talk me into and out of everything they wanted. This year I am a new person! No more letting others tell me what is best for my child. I know what he needs, what he can handle. Well this year, once again, he was pced in a PPCD only class. At "meet the teacher night" I expressed my concerns about Sam being with speaking children and having the opportunity to be in an integrated classroom. The teacher said she would keep an eye on him to see if he was in the best placement. As it turned out, I did not wait for her to tell me. The three or four times I brought Sam to school I saw some things in that classroom that were very disturbing to me. Not dealing with the teachers mind you, but two of the three other children in the class. I won't go into detail, but suffice it to say that I knew Sam would not learn anything good in that class. I believe it was the fourth day of school that I called the principal and told her I wanted to try Sam in the integrated class. Yay! for me, I did not back down! He just finished his fourth day of the "trial period" in the integrated class and I am thrilled to report he is doing well according to his teacher!

Jul 27, Getting Ready for Your Baby with Down Syndrome

Fri, 27 Jul 2007 05:21:07 GMT

Helpful hints about getting ready for your baby with Down Syndrome. List of nursery needs, list of things to bring to the hospital, some things to consider...

Jul 27, Taking Care of Yourself and Your Family When You Have a Child With Down Syndrome

Fri, 27 Jul 2007 05:19:45 GMT

Some advice on taking care of yourself and your family when you have a child with Down Syndrome

Jul 27, Welcome to Holland

Fri, 27 Jul 2007 05:18:17 GMT

Welcome to Holland is a very moving story describing the emotions experienced when finding out your baby has a disability.

Jul 27, Safe Tummy Time

Fri, 27 Jul 2007 05:15:06 GMT

Tips for safe tummy time for babies with Down Syndrome.

Jul 27, The Tongue in Down Syndrome

Fri, 27 Jul 2007 03:11:14 GMT

Often falsely accused of being larger than those of its non-Down Stongue in Dowyndrome counterpart, the tongue in Down Syndrome is actually not larger than normal in most cases.

Jul 27, Healthy Teeth in Down Syndrome

Fri, 27 Jul 2007 03:09:43 GMT

How to promote healthy teeth in Down Syndrome.

Jul 27, Our Story About Down Syndrome Continues...

Fri, 27 Jul 2007 03:08:39 GMT

Our story about Down Syndrome and how it has affected our family continues...

Jul 27, Speech Therapy for Down Syndrome

Fri, 27 Jul 2007 03:06:43 GMT

Speech therapy for Down Syndrome gives a brief description of things to come involving language and speech. Also described are some of the other forms of communication used by kids with speech issues

Jul 27, Heaven's Very Special Child

Fri, 27 Jul 2007 03:05:43 GMT

Heaven's Very Special Child is a poem written by Edna Masimilla when her child with Down Syndrome was born.

Jul 27, Special Angel

Fri, 27 Jul 2007 03:05:03 GMT

Special Angel is a touching poem about a child with Down Syndrome.

Jul 27, Safe Sleep for Babies with Down Syndrome

Fri, 27 Jul 2007 03:04:05 GMT

Have you ever wondered exactly what people mean when they recommend safe sleep for babies? Well, here's the answer. Safety tips from the U.S. Consumer Product Safety Commission.

Jul 27, Prenatal Tests for Down Syndrome

Fri, 27 Jul 2007 03:03:17 GMT

Prenatal tests for Down Syndrome

Jul 27, Prenatal Diagnosis of Down Syndrome

Fri, 27 Jul 2007 03:02:25 GMT

This page is for parents who have received a prenatal diagnosis of Down Syndrome for their baby

Jul 27, Stories and Poems about Down Syndrome

Fri, 27 Jul 2007 03:01:31 GMT

Stories and poems about Down Syndrome

Jul 27, Physical Therapy in Down Syndrome

Fri, 27 Jul 2007 02:56:24 GMT

A brief oveview of physical therapy in Down Syndrome. Reveals the real purpose for physical therapy in Down Syndrome and tells you how you can help maximize the positive effects.

Jul 27, Most Common Characteristics and Physical Symptoms of Down Syndrome

Fri, 27 Jul 2007 02:54:53 GMT

Describes the most common physical symptoms and characteristics of people with Down Syndrome

Jul 27, For Parents of a New Baby with Down Syndrome

Fri, 27 Jul 2007 02:53:10 GMT

Do you have a new baby who has Down Syndrome? Click here to see more information about Down Syndrome for new parents.

Jul 27, When you are the Caretaking Parent of a Baby with Down Syndrome

Fri, 27 Jul 2007 02:50:20 GMT

When you are the caretaking parent of a baby with Down Syndrome it is easy to get overwhelmed. Tips to help you and your spouse maintain a healthy relationship.

Jul 27, Your Baby's Nursery Needs

Fri, 27 Jul 2007 02:34:46 GMT

A list of nursery needs to get ready for baby whether he has Down Syndrome or not.

Jul 27, More on Low Muscle Tone and Other Characteristics

Fri, 27 Jul 2007 02:30:22 GMT

Consequences of low muscle tone and other physical characteristics peculiar to children with Down Syndrome

Jul 27, Living With Down Syndrome

Fri, 27 Jul 2007 02:20:36 GMT

Has your baby recently been diagnosed with Down Syndrome? Do you know someone who has a baby with DS? Read this section on living with Down Syndrome to find tons of information and support

Jul 27, Life Planning in Down Syndrome

Fri, 27 Jul 2007 02:17:30 GMT

Ever wonder what might happen to your special needs child when you are no longer around? Our Life Planning in Down Syndrome page will help you get started.

Jul 27, Einstein Syndrome

Fri, 27 Jul 2007 02:03:14 GMT

Einstein Syndrome is an article that really, really hits home.

Jul 27, Down syndrome teeth

Fri, 27 Jul 2007 01:55:10 GMT

In children with Down Syndrome teeth often behave differently than in others. Read more here.

Jul 27, Down Syndrome Swallowing

Fri, 27 Jul 2007 01:50:05 GMT

Another factor that can lead to Down Syndrome swallowing problems is the differemce in facial and oral structure many kids with Down Syndrome have.

Jul 27, Down Syndrome Stories, Photos and Poems

Fri, 27 Jul 2007 01:42:52 GMT

Down Syndrome stories and the story of our son, Sam, photos, poems, your stories, photos and submissions.

Jul 27, Down Syndrome Statistics

Fri, 27 Jul 2007 01:41:01 GMT

Down syndrome statistics and incidence

Jul 27, Down Syndrome Siblings

Fri, 27 Jul 2007 01:38:19 GMT

down syndrome siblings

Jul 27, Down Syndrome sonograms

Fri, 27 Jul 2007 01:32:41 GMT

When screening for Down syndrome sonograms may be done by your doctor to look for signs of the genetic condition.

Jul 27, Down Syndrome Pictures

Fri, 27 Jul 2007 01:10:01 GMT

About Down Syndrome Pictures

Jul 27, Down Syndrome Medical Problems

Fri, 27 Jul 2007 01:06:21 GMT

Find out here what some of the Down Syndrome medical problems are that can affect your baby's feeding skills.

Jul 27, Aging and Down Syndrome Lifespan

Fri, 27 Jul 2007 01:04:23 GMT

A general description of the Down Syndrome lifespan

Jul 27, Down Syndrome Gross Motor Development

Fri, 27 Jul 2007 00:58:47 GMT

Wondering about all the therapy gibberish that is being thrown at you? Down Syndrome Gross Motor Development will get you started in understanding your baby's developmental patterns.

Jul 27, Down Syndrome for Friends and Relatives

Fri, 27 Jul 2007 00:57:25 GMT

Have a friend or loved who has a new baby with Down Syndrome? Then Down Syndrome for Friends and Relatives is for you. Find out what's helpful and what's not.