Down Syndrome for New Parents

First of all, "Congratulations on your new baby!" This will likely be a time of mixed emotions for you. You probably feel the joy of having a new baby. At the same time you are probably feeling somewhat sad over the loss of the "perfect" baby you were expecting. Grieving for the loss of your hopes and dreams for this new little one is a normal process. There is no need to feel guilty. It is normal and you will create new hopes and dreams.

You will do many of the things parents do with "typical" babies. You will feed, change diapers and bathe your baby. Feeding your baby with Down Syndrome may or may not be a bit of a challenge.

Barring any major medical problems, you and your baby should spend lots of time getting to know each other, just as you would with any other baby. Sing to him. Talk to him. Hold him and rock him. This is a time of bonding for both of you. If your baby has to remain in the hospital after you go home this will be a little more difficult but you can still bond when you visit him there and after he gets home.

This is also a great time to read a book or two on Down Syndrome for new parents, watch a video or surf the internet for information. The book I read first was called Babies with Down Syndrome and the author is Karen Stray-Gundersen. It is a very informative book.

You may also want to get in contact with some other parents of children with Down Syndrome. Another parent can be a great support and a valuable resource.

You will likely begin early intervention at some point in the second or third month unless your child has a serious medical condition. Early intervention is so important for our children because the therapies they receive through early intervention are the stepping stones to becoming a functional member of society.

Siblings

Should you tell siblings? Obviously older siblings will have an idea that something is going on. Younger ones may not, but the consensus is, yes, tell the siblings. Tell them the truth about their new little brother or sister. Explain to them what kinds of differences they might see. Be truthful and honest. This may make it a little easier for them to understand why you spend more time with little Joey.

They might feel a bit embarassed about their disabled (or differently abled) brother or sister. Especially older kids, and as the baby gets older (and the delays more noticeable). They may be embarassed by his different features or, as the baby gets older they might feel embarassed about the way he acts or talks. Let them know this is okay. Give them some time alone with you. Take them to the movies or out to eat. Above all, talk to them. Just like you, they should not feel guilty about their negative thoughts and feelings about their new sibling. Just let them know they can come to you and talk.

For more information on Down Syndrome for new parents see the book list.

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**The information on this website is not intended to be a substitute for professional medical advice. Rather, it is for educational and informational purposes only. You, the viewer, are responsible for obtaining health care for your child from his/her physician and other health care specialists. Always consult with your child's doctor before beginning any therapy programs.**